Community engagement and knowledge translation: progress and challenge in autism research.

TitleCommunity engagement and knowledge translation: progress and challenge in autism research.
Publication TypeJournal Article
Year of Publication2014
AuthorsElsabbagh M, Yusuf A, Prasanna S, Shikako-Thomas K, Ruff CA, Fehlings MG
Date Published2014 Oct
KeywordsAutistic Disorder, Canada, Community Health Planning, Community Health Services, Consumer Participation, Delivery of Health Care, Developing Countries, Evidence-Based Medicine, Health Knowledge, Attitudes, Practice, Health Services Needs and Demand, Humans, Information Dissemination, Research

The last decade has seen significant growth in scientific understanding and public awareness of autism. There is still a long road ahead before this awareness can be matched with parallel improvements in evidence-based practice. The process of translating evidence into community care has been hampered by the seeming disconnect between the mainstream scientific research agenda and the immediate priorities of many communities. The need for community engagement in the process of translating knowledge into impact has been recognized. However, there remains little consensus or empirical data regarding the process of such engagement and how to measure its impact. We shed light on a number of engagement models and tools, previously advocated in health research, as they apply to autism research. Furthermore, we illustrate the utility of such tools in supporting identification of knowledge gaps and priorities, using two community-based case studies. The case studies illustrate that information generated from research is indeed relevant and critical for knowledge users in the community. Simple and systematic methods can support the translation and uptake of knowledge in diverse communities, therefore enhancing engagement with research and bridging research findings with immediate community needs.

Alternate JournalAutism
PubMed ID25128332
Grant List / / Canadian Institutes of Health Research / Canada